In many public discussions about health care, the patient perspective is presented by disease-based organizations, health care professionals, researchers, or policy makers, who often have their own points of view that should not be confused with those of patients. This organization is part of a larger trend to engage citizens with their communities and to enable them to speak for themselves.
http://patientsassociation.ca/
http://patientsassociation.ca/blog
Patient stories
Important to our association is the collection of patient narratives, documenting patient experiences. It is through the collection and articulation of these narratives that we hope to gain a more thorough understanding of what the patient perspective is on current health care systems and services, and the criteria that describe patient sensitive care.
