CureTogether was almost born as "Patient-Driven Research" (but the URL was too long).
Bringing patients into research as active partners is one of our big missions at CureTogether.
Partnering with universities, research organizations, and self-experimenters will help us to make new discoveries and connections faster, ask better questions about patient data, and validate that online methods for data gathering are effective for research purposes.
Here are the studies and partnerships we have so far:
Emory University
Adam Sperduto and Suephy Chen
Feasibility and Reliability of Internet Crowdsourcing Data Collection with Dermatologic Quality of Life Assessment Tools
Adam Sperduto and Suephy Chen
Feasibility and Reliability of Internet Crowdsourcing Data Collection with Dermatologic Quality of Life Assessment Tools
Carnegie Mellon University
Kateryna Kuksenok and Jen Mankoff
Dynamic filtering visualization of CureTogether data (in progress)
Kateryna Kuksenok and Jen Mankoff
Dynamic filtering visualization of CureTogether data (in progress)
Stanford University
Diana MacLean and Jeff Heer
Analysis and visualization of community dynamics and data over time (jn progress)
Diana MacLean and Jeff Heer
Analysis and visualization of community dynamics and data over time (jn progress)
Drexel University
Will Dampier
Building an adaptive recommendation system for treatments (in progress)
Will Dampier
Building an adaptive recommendation system for treatments (in progress)